94 United States Renal Data System (USRDS)

94.1 Organization

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

94.2 Website

www.usrds.org

94.3 Description

• All national data on patients receiving dialysis and kidney transplant
• De-identified, adult and pediatric data
• Additional data available through additional requests: special studies data, CROWNWeb clinical data, ESRD medicare payment data, pre-ESRD medicare payment data, CKD 5% medicare sample SAFs, ESRD clinical performance measures.

94.4 Vintage/Release Frequency

Released since 1998

94.5 Observational Unit

Patients with ESRD and kidney transplant

94.6 Collection Methodology

Main data collected in all US dialysis centers for all patients

94.7 Available at

Instructions for obtaining the standard analysis files can be found at https://www.niddk.nih.gov/about-niddk/strategic-plans-reports/usrds/for-researchers/standard-analysis-files

94.8 User Guide/Data Dictionary

https://www.niddk.nih.gov/about-niddk/strategic-plans-reports/usrds/for-researchers/researchers-guide

94.9 Cost

There is no cost for the standard analysis files but other data requests might involve a cost.

94.10 Proposal or Application required?

Yes

94.11 DUA required?

Yes

94.12 Special Notes

• Some data collection forms have changed over time.