92 United Network for Organ Sharing (UNOS)

92.1 Organization

Organ Procurement and Transplantation Network (OPTN), United Network for Organ Sharing (UNOS)

92.2 Website

https://optn.transplant.hrsa.gov/data/

92.3 Description

• All national data on the candidate waiting list, organ donation and matching, and transplantation
• De-identified, adult and pediatric data
• Over 3,500 variables from 26 different form types
• All organs

92.4 Vintage/Release Frequency

NA

92.5 Observational Unit

Wait-listed candidates, living and deceased donors and transplant recipients

92.6 Collection Methodology

Collected via an online Web application by Transplant professionals at hospitals, histocompatibility (tissue typing) laboratories, and organ procurement organizations

92.7 Available at

• Request data at: https://optn.transplant.hrsa.gov/data/request-data/
• In general, SRTR data contains all of UNOS data plus more and is better suited for research. See SRTR data description.

92.8 User Guide/Data Dictionary

• https://optn.transplant.hrsa.gov/data/about-data/
• https://transplantpro.org/technology/data-collection-forms/

92.9 Cost

STAR files are free of charge. Requests for custom limited data, patient-identified datasets and aggregate data can be made and processing fees may apply.

92.10 Proposal or Application required?

Yes

92.11 DUA required?

Yes

92.12 Special Notes

• Data released with approximately 1 year lag
• Some data collection has changed over time