78 Scientific Registry of Transplant Recipients (SRTR)

78.1 Organization

Division of Transplantation, HHS

78.2 Website

https://www.srtr.org/

78.3 Description

  • All national data on the candidate waiting list, organ donation and matching, and transplantation
  • De-identified, adult and pediatric data
  • All solid organs

78.4 Vintage/Release Frequency

SAFs are released quarterly (March, June, September, and December of each year) since 1987

78.5 Observational Unit

Candidates for transplant, recipients of solid organ transplants, deceased and living donors, donors procured for the purpose of transplantation, immunosuppression medications

78.6 Collection Methodology

  • Primary source of data is the Organ Procurement and Transplantation Network (OPTN)
  • OPTN collects data from transplant programs, organ procurement organizations (OPOs), and histocompatibility laboratories
  • United Network for Organ Sharing (UNOS), contractor for OPTN, first developed the OPTN data collection system in 1986 under contract with HHS, and the system has since undergone numerous changes

78.8 User Guide/Data Dictionary

78.9 Cost

Standard Analysis Files (SAF) cost $1000; each additional, updated SAF costs $500

78.10 Proposal or Application required?

Yes

78.11 DUA required?

Yes

78.12 Special Notes

  • SRTR database contains all data in UNOS plus additional data.
  • Manuscripts must be sent to SRTR for review prior to submission.